December 4, 2008 at 12:30 am #27522Unknown,UnknownParticipantModerators: Please delete this if it violates any forum policies.
My brother is raising money for charity by running.
Pleas e read below . He is doing an aweso me thing and if you can contr ibute anyth ing pleas e do so. He is a true hero. And he is also a huge Sierra buff like all of us. 🙂
From Paul Kenne
Join me in suppo
rting the A-T Child ren’ s Proje ct by spons oring me in my fundr aisin g effor ts. I am raisi ng money for a cure or life- impro ving thera pies for a rare genet ic disea se calle d ataxi a- telan giect asia ( A- T). Visit my fundr aisin g page, and pleas e pass it on to your frien ds! Eithe r click on the link below , or copy and paste the link into your web brows er.
I am invol
ved with a treme ndous organ izati on – one that’ s racin g to find a cure for ataxi a- telan giect asia, or A-T for short . A-T is a rare genet ic disea se that attac ks child ren. Imagi ne a disea se that combi nes the worst sympt oms of cereb ral palsy , cysti c fibro sis, muscu lar dystr ophy, cance r, and immun e defic ienci es –all rolle d into one fatal disea se. Child ren who could once run and play, sing and talk, and read and write lose their motor skill s one by one. Sadly those suffe ring from A-T are usual ly in wheel chair s by age ten, and often do not survi ve their teens . And, becau se of the multi funct ional role of the A-T prote in in cells , A-T resea rch has far reach ing publi c healt h impli catio ns for more preva lent disea ses such as Parki nson’ s, Alzhe imer’ s, cance r, AIDS, metab olic syndr ome and diabe tes.
ry 10 and 11, I will be parti cipat ing in the Goofy ’s Race and a Half Chall enge, which is a half marat hon on Satur day and a full marat hon on Sunda y at Disne y World . I will be part of the A-T CureT our Marat hons and Races , a group of runne rs, jogge rs and walke rs who raise money by parti cipat ing in endur ance event s and races aroun d the count ry for the A-T Child ren’s Proje ct. The A-T Child ren’s Proje ct is a publi c chari ty that raise s funds to suppo rt and coord inate biome dical resea rch proje cts, scien tific confe rence s, and the A-T Clini cal Cente r at Johns Hopki ns Hospi tal all aimed at findi ng a cure or life- impro ving thera pies for A-T. By regis terin g with the A-T Child ren’s Proje ct for the Goofy Chall enge, I can help this unbel ievab le group of famil ies and frien ds copin g with this devas tatin g disea se and make a real diffe rence for these child ren.
I am excit
ed that you now have the oppor tunit y to join me in helpi ng these kids while furth ering resea rch for other more preva lent disea ses. My perso nal goal is to raise $ 600. 00 by Decem ber 19, 2008.
For a $20 donat
ion, I will place your name on my race shirt for the half marat hon. For a $30 donat ion, I will place your name on my race shirt for the full marat hon. And for $50, I will place your name on my race shirt for both races .
s a littl e more than $1 per mile for your spons orshi p!
e click on the link below to acces s my fundr aisin g webpa ge.
If the link does not work,
pleas e visit the websi te at http://www.atcp. org and click on the Donat e Now link where you will find the link to “Supp ort a Marat honer .” You can searc h for my fundr aisin g web page by choos ing the Searc h link next to my race. By suppo rting me, you will be makin g a treme ndous impac t on this grass roots chari ty that has achie ved so much with so littl e. If you have any quest ions about A-T or the A-T Child ren’s Proje ct, pleas e do not hesit ate to conta ct Jenni fer Thorn ton, Execu tive Direc tor direc tly at 800- 5- HELP- A-T ( 800- 543- 5728) or jenni fer@ atcp. org
you so much for your donat ion!